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    Last Updated: 02/22/2026

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    MediFind found 15 doctor with experience in Paramyotonia Congenita near Saint Louis, MO. Of these, 12 are Experienced and 3 are Advanced.

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    15 providers found
      Experienced in Paramyotonia Congenita
      Experienced in Paramyotonia Congenita

      St Louis University Hospital

      1201 S Grand Blvd, 
      Saint Louis, MO 
       (2.3 miles away)
      Languages Spoken:
      English

      Jafar Kafaie is a Neurologist in Saint Louis, Missouri. Dr. Kafaie is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Experienced in Paramyotonia Congenita
      Experienced in Paramyotonia Congenita

      Washington University

      660 S Euclid Ave, 
      Saint Louis, MO 
       (3.5 miles away)
      Languages Spoken:
      English

      Craig Zaidman is a Neurologist in Saint Louis, Missouri. Dr. Zaidman is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Spinal Muscular Atrophy (SMA), and Primary Lateral Sclerosis.

      Advanced in Paramyotonia Congenita
      Advanced in Paramyotonia Congenita

      Washington University

      4921 Parkview Pl, Suite 6c, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Arun Varadhachary is a Neurologist in Saint Louis, Missouri. Dr. Varadhachary is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Gastrostomy. Dr. Varadhachary is currently accepting new patients.

      Learn about our expert tiers
      Alan Pestronk
      Experienced in Paramyotonia Congenita
      Experienced in Paramyotonia Congenita

      Center For Advanced Medicine

      4921 Parkview Place, Suite 6C, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Alan Pestronk is a Neurologist in Saint Louis, Missouri. Dr. Pestronk is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Dysferlinopathy, Miyoshi Myopathy, Pompe Disease, and Myasthenia Gravis. Dr. Pestronk is currently accepting new patients.

      Advanced in Paramyotonia Congenita
      Internal Medicine
      Advanced in Paramyotonia Congenita
      Internal Medicine

      Physician Groups Lc

      1110 Highlands Plaza Dr E, 
      Saint Louis, MO 
       (4.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      John Ellena is a primary care provider, practicing in Internal Medicine in Saint Louis, Missouri. Dr. Ellena is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Jaundice, Cholestasis, Endoscopy, and Ureteroscopy. Dr. Ellena is currently accepting new patients.

      Experienced in Paramyotonia Congenita
      Experienced in Paramyotonia Congenita

      Ssm Health Care Group

      1201 S Grand Blvd, 
      Saint Louis, MO 
       (2.3 miles away)
      Languages Spoken:
      English, Arabic
      Accepting New Patients
      Offers Telehealth

      Sara Huser is a Neurologist in Saint Louis, Missouri. Dr. Huser is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. Her top areas of expertise are Foot Drop, Migraine, Spasticity, and Inclusion Body Myositis. Dr. Huser is currently accepting new patients.

      Experienced in Paramyotonia Congenita
      Experienced in Paramyotonia Congenita
      517 S Euclid Ave, Div Neurology Neuromuscular, G Fl, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English

      Glenn Lopate is a Neurologist in Saint Louis, Missouri. Dr. Lopate is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, Chronic Demyelinizing Neuropathy with IgM Monoclonal, and Peripheral Neuropathy.

      Experienced in Paramyotonia Congenita
      Experienced in Paramyotonia Congenita

      Washington University

      4921 Parkview Pl, Suite 6c, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Muhammad Al-Lozi is a Neurologist in Saint Louis, Missouri. Dr. Al-Lozi is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Myotonia Congenita, Myasthenia Gravis, Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, and Gastrostomy. Dr. Al-Lozi is currently accepting new patients.

      Experienced in Paramyotonia Congenita
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Paramyotonia Congenita
      Pediatric Neurology | Pediatrics | Neurology

      Washington University

      4921 Parkview Pl, Suite 6c, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Renatta Knox is a Pediatric Neurologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Knox is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Cerebral Hypoxia, Potassium-Aggravated Myotonia, and Isaacs' Syndrome. Dr. Knox is currently accepting new patients.

      Experienced in Paramyotonia Congenita
      Experienced in Paramyotonia Congenita

      Washington University

      4921 Parkview Pl, Suite 6c, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Andrew Findlay is a Neurologist in Saint Louis, Missouri. Dr. Findlay is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Dystrophinopathy, Facioscapulohumeral Muscular Dystrophy (FSHD), and Becker Muscular Dystrophy. Dr. Findlay is currently accepting new patients.

      Experienced in Paramyotonia Congenita
      Experienced in Paramyotonia Congenita
      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English

      Naman Bareja is a Neurologist in Saint Louis, Missouri. Dr. Bareja is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Oculopharyngeal Muscular Dystrophy, Facioscapulohumeral Muscular Dystrophy (FSHD), Myotonic Dystrophy, and Myotonic Dystrophy Type 2.

      Experienced in Paramyotonia Congenita
      Experienced in Paramyotonia Congenita

      Comprehensive Vascular Services LLC

      1035 Bellevue Ave Ste 500, 
      Saint Louis, MO 
       (6.2 miles away)
      Languages Spoken:
      English

      Niranjan Singh is a Neurologist in Saint Louis, Missouri. Dr. Singh is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Memory Loss, Migraine, Multiple System Atrophy, Headache, and Posterior Fossa Decompression.

      Experienced in Paramyotonia Congenita
      Neurology | Sleep Medicine
      Experienced in Paramyotonia Congenita
      Neurology | Sleep Medicine

      Washington University

      1600 S Brentwood Blvd, Suite 600, 
      Saint Louis, MO 
       (8.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Luqi Chi is a Neurologist and a Sleep Medicine provider in Saint Louis, Missouri. Dr. Chi is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Obstructive Sleep Apnea, Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy. Dr. Chi is currently accepting new patients.

      Advanced in Paramyotonia Congenita
      Advanced in Paramyotonia Congenita

      Hshs Medical Group Inc

      3 Saint Elizabeth Blvd, 
      O Fallon, IL 
       (14.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Raghav Govindarajan is a Neurologist in O Fallon, Illinois. Dr. Govindarajan is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. His top areas of expertise are Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Familial Paroxysmal Nonkinesigenic Dyskinesia, Thymectomy, and Thrombectomy. Dr. Govindarajan is currently accepting new patients.

      Experienced in Paramyotonia Congenita
      Neurology | Psychiatry
      Experienced in Paramyotonia Congenita
      Neurology | Psychiatry

      Mercy Clinic Neurology, LLC

      621 S New Ballas Rd, 5003b, 
      Saint Louis, MO 
       (13.4 miles away)
      Languages Spoken:
      English, Croatian
      Accepting New Patients

      Ksenija Kos is a Neurologist and a Psychiatrist in Saint Louis, Missouri. Dr. Kos is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. Her top areas of expertise are Multiple Sclerosis (MS), Movement Disorders, Parkinson's Disease, and Peripheral Neuropathy. Dr. Kos is currently accepting new patients.

      Showing 1-15 of 15

      Last Updated: 02/22/2026

      What is the definition of Paramyotonia Congenita?

      Paramyotonia congenita is a disorder that affects muscles used for movement (skeletal muscles). Beginning in infancy or early childhood, people with this condition experience bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing normally. Myotonia causes muscle stiffness that typically appears after exercise and can be induced by muscle cooling. This stiffness chiefly affects muscles in the face, neck, arms, and hands, although it can also affect muscles used for breathing and muscles in the lower body. Unlike many other forms of myotonia, the muscle stiffness associated with paramyotonia congenita tends to worsen with repeated movements.

      When should I see a Paramyotonia Congenita doctor near Saint Louis, MO?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Paramyotonia Congenita doctor near Saint Louis, MO?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Paramyotonia Congenita doctors near Saint Louis, MO?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Paramyotonia Congenita doctors near Saint Louis, MO?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Paramyotonia Congenita doctor near Saint Louis, MO?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Paramyotonia Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Paramyotonia Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Paramyotonia Congenita doctor near Saint Louis, MO?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Paramyotonia Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Paramyotonia Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Paramyotonia Congenita doctors near Saint Louis, MO?

      Look for the filter feature on the left side of the Paramyotonia Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Paramyotonia Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Paramyotonia Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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